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What is flake on walls with cerebral palsy |
[Introduction]
Hey everyone please allow me to introduce myself my name is Caitlin but everyone one I know calls me Katie. I have a disability known as cerebral palsy and I wanna to tell you about my life and What this disability and how it effects the people who have it. No it does not mean that I am paralyzed because I’m not cerebral palsy is a mental disability as well as physical at times what type that I have specifically is known as spastic Diplegia cerebral palsy. Cerebral palsy is often categorized as a brain injury at all right before birth either from lack of oxygen or even too much oxygen at one time or even simply just a freak accident yes this disability does have some cognitive learning issues that go with it as well as physical but not everyone who has this disability has both have Both cognitive and physical issues some have either or And some might have both. There are some people with this condition can Walk some can’t some have speech issues and some can’t walk Or talk No I can’t walk but I can talk Very well yes I have my physical limits and yes I do need help on a daily basis doing simple things such as taking a shower getting dressed or even going to the bathroom does suck sometimes do I get looks yes do I get Whispers oh most definitely and sometimes people leave and act like I’m either DEF or not even there at all I can make decisions for myself but a lot of the time people make them for me thanking that I can’t do it but that’s not true I can but because of my disability papers like I’m lacking in the some way or that I’m fragile and need to be protected honestly do it so much sometimes it drives me nuts and everything I do think or say is under a constant microscope I have no respect When it comes to a decision I’ve made because people think oh poor girl she’s in a wheelchair she must not be able to think for herself she must not know what it’s like to have a real life but the truth is I do I may not have it the same way someone who is able body does And yes I have people watching my every move things I say even the things I do I can’t even be alone for more than an hour at a time Because of my disability Now having said all that white day-to-day stuff I’m having to constantly be under a microscope does get frustrating a lot the one thing I find the hardest to deal with what do you even do at times is it admit that I need help sometimes I feel like my body is turned against me to the point that even at 30 years old I can’t even go on a date drinks or even go out with the few friends to have drinks because I’m Constantly under a microscope I’ve heard what time and time again all people his CPA have it easy because they have everything done for them trust me it’s anything but easy in fact it’s the exact opposite because I can walk I can’t even get myself up to go to the bathroom without needing help more often than that yes just a simple little task set an every day human can do that I can get very frustrated people always tell me oh I know how you feel no you don’t you don’t know what it feels like to have your body turn against you and know that you can’t even simply Get dressed every day without meeting someone there don’t get me wrong having some help when you have a disability is a good thing but with everything you do say or even think it’s something that you have to spoil to someone else When it’s really none of their business volcanic cage with people poking at me because they feel you’ve made the wrong decision or that you’re doing something the way I see it is on the day-to-day basis stuff people were able body can come and go as they please go out with friends have Even go on a date without having to worry call me how am I going to take myself or even home I’m gonna put my pants on people were able-bodied mean well but they just don’t get it take it for granted the fact that they can make themselves take themselves to the bathroom drive a car They take for granted all the simple stuff that they get to do the people with cerebral palsy can’t because to them it’s just so easy the truth is it’s not easy not when you have a disability that makes your body wanna fight against what your brain says to do that makes people wanna question Your thinking process for you keep your body just because you have this disability believe me I’ve dealt with this all my life and I’m still dealing with and truth be told and 30 almost 31 years old I am exhausted here I was thinking when my mother died that I would finally get to live the life that I want to live but I don’t simply because everything in my life is being watched scrutinized and questioned by the people around yes I am but no I am not in capable of having the same thing that everyone else does freedom sometimes I feel like having whiskey for Bobby is more of a problem then a freedom there’s days that I can’t sleep because my body is in so much pain and stiffness but literally all I can do is lay here and cry knowing that it’s part of my condition yes I have good days and yes I have bad days And Sunday is my name under a microscope it just feels like the day week or month or year will never end all the questions the constant scrutiny it just all gets to be too much and yes there are a lot of days that I wake up and I’m like what the hell am I doing there’s nothing worse I’m not being able to figure out what your own buddy wants most days I do with it because I don’t have a choice but there are some days that I just want one day to do whatever the hell I wanna do with no restrictions no microscoping just Katie and yes even people with other disabilities have told me that I have it easy when really the caregivers that have it easy because they get a break people that have my condition we don’t get a break we can’t run away from it and saying oh I don’t wanna deal with it for a couple hours because it is constant people that say oh I know if physical pain is no you don’t because you don’t have to Deal with it every day and still somehow find a way to function no matter how bad you because you don’t have a choice you don’t know what it’s like to want to stand on your own 2 feet like everybody else but know that if you do you could fall or break something or even get a head injury that can kill you if you hit it hard enough you don’t know how peopleThat are highly intelligent like me feel insulted when someone else questions what it is we’ve decided to do or even a decision with made yes I’ll from Tom Thomas times that I have in my disability has change someone else’s life but just be told I don’t really know if I believe it or not believe it or not so I guess the moral of the story is next time you see somebody with a disability make their day by simply asking Them what their disability is instead of staring at them or thinking that because they have a disability they must not be able to think for themselves or that they somehow me because the truth is I personally think people disabilities are quite a bit smarter than your average every day able bodied Because we don’t take the simple things that we can do for granite but people they can walk they definitely do I am 30 years old and I don’t even know how to drive a car that’s pathetic And I honestly think to put a little humor on it that I may end up being a 30-year-old virgin for the rest of my life sometimes you just need one day for the logistics legalities and the straight up bullshit don’t matter will you have a moment to breathe and reset your brain so please do you me and every other Person with a disability a favor and stop taking life in the small things for granite because you never know there may be a day that you end up in my shoes and then you’ll really know what it’s like to be on the sand oh and one more thing there are a lot of caregivers that because of the way disabilities act doesn’t wanna be around them but my way of Looking up part is they’re thinking about their own frustrations and not thinking about the frustration that we have to deal with non-stop so the next time you think you don’t want to be around someone because of the way that because of the disability put yourself in their shoes you would feel pretty insulted if somebody did that to you so don’t do it to them Because you never know they may come that you end up just like me have a good night everyone
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